It involves the following medications;
Endo Pharmaceuticals Opiate Products by Novartis Consumer Health: Public Health Advisory - Potential Safety RiskIncluding the following products:
For more details please click on the link above.
Peace, Keith
Saturday, January 14, 2012
FDA ALERT FOR THE OXY FAMILY - JANUARY 2012
There is an important recall notice out regarding the Oxy family of medications, sent out by the FDA;
CRPS and surgery
There is a new article regarding CRPS and surgery on our website;
in case you ever have that question tossed at you, for yourself or a loved one. It is a question we have been getting asked a lot lately so we thought we should post something about it!
Keith
Saturday, December 3, 2011
Books on Pain
People are always asking me if there are any good books to check out. There are a couple of books I would recommend.
One of them is called "Living Beyond Your Pain" by Joanne Dahl and Tobias Lundgren. It is about using something called Acceptance and Commitment Therapy to ease chronic pain. A few years ago I gave a talk on it at one of the national conferences up in Portland, ME. I had the pleasure of speaking with Dr Dahl at length before I put my presentation together and pick her brain a bit and it was very helpful. I am trying to figure out a way to put some of the parts of the video presentation of that talk on our website.
You should be able to find a copy of the book on Amazon.
Another book that might still be out there on Amazon, used copies maybe, is called Persistence is Power by Jeanne Lazo. Good book. Some of the info may be out of date now but most of it is very good info.
Another author to check out is Dr Allan Chino. He is a psychologist who specializes in behavioral pain management. His most popular book is called "Validate Your Pain, Exposing the Chronic Pain Cover-Up". It is available on Amazon as well.
Dr Chino is a past governor appointee to the Oregon Pain Society and has worked tirelessly on behalf of pain patients. He also has spoken at a few of American RSDHope's past conferences.
So check these books out and see what you think, let me know!
have a great week,
Keith
Tuesday, November 22, 2011
Dead Links? Prior posts have links that don't work?
BTW, if you are reading any of the old blog posts and you come across a link that does not work, it is because it is linked to the old website. Chances are the information is still with us, just on the new site in a different place. Let me know what you need and I can direct you to it.
The website address is still the same but the site is all updated!
If you haven't been yet, check it out!
Take care, Keith
Radio Show - National Awareness Month 2011
Hey everyone! Happy National CRPS Awareness Month 2011!
Happy Thanksgiving 2011!
If you were not following our new website you might not have seen that I was on one of the internet radio call-in shows last week. It was a 60 minute show, that they graciously extended to 90 minutes, to discuss CRPS / RSD and let me share some of my story and thoughts.
If you did not get to hear it you can go to the THE WEBSITE and listen to the show in its' entirety.
It was a great deal of fun, Marla the hostess is very funny and has a great outlook on life. We had some great callers and questions and both Marla and I have promised to do another show again in the future. I think she is very lucky to get to do this every week! She gets to talk to so many interesting people.
If you get a chance look through her show archives. One of her past guests was someone I have talked about here on the blog, Dr Spiegel. The Dr who I think is one of the best in the country at performing HBO Therapy. He even gets a chance to discuss something very near and dear to him, his charity work with returning soldiers. It is an amazing program that is growing by leaps and bounds.
The new look to the website, RSDHope is getting great feedback. Thanks everyone! It took a lot of work but it was worth it. If I was one of the "normals" (those people without disease of any kind) it probably would have been done in 1/5 the time it took me, but with all the cognitive issues to deal with everything takes so much longer. Plus, when you can only sit for so long at a time, well, you guys know where I am coming from.
There was an excellent article today from ABC News on Sjogren's Syndrome! I don't know if anyone else out there with CRPS has this but it is a real pain in the tuckkus!
After reading it if you think you might have it click on the link to the Sjogren's Syndrome website. It is a great website that has everything very well spelled out. It is easy to understand.
Well guys, have a wonderful holiday and if you have any questions, just shoot me an email. Check out our website and let us know what you think.
BTW, if you are reading any of the old blog posts and you come across a link that does not work, it is because it is linked to the old website. Chances are the information is still with us, just on the new site in a different place. Let me know what you need and I can direct you to it.
Peace all, be good to one another as they say,
Keith
American RSDHope
Saturday, August 27, 2011
How many Americans Suffer from Chronic Pain?
One Million?
Five Million?
Ten Million?
More?
Fifty Million?
No googling the answer now. No cheating!
Would you believe ... 100 Million Americans suffer from Chronic Pain?
In a June article on WebMD by Salynn Boyles they discuss the cost, around $600 Billion, a YEAR! And they say that is probably underestimated because it does not include the military and children.
Now we know that since the war in the gulf more soldiers are coming home with chronic pain due to the extreme nerve injuries from the IED's (and since they have been making them for many years can they stop calling them improvised already?), and every year more and more children seem to be getting diagnosed with chronic pain, so this number in my opinion, is waaay off. That would also make the 100 Million number off as well. But it does give you a good idea of the chronic pain problem in our country.
Years ago it was kind of the secret no one wanted to talk about. If you had someone in your family who suffered from chronic pain, they weren't able to work, they endured an endless chain of Drs trying to find the correct diagnosis, or were in search of the right combination of medication and/or treatment no one wanted to talk about them.
They were often labeled malingerers, layabouts, or other such things. Especially if they were unable to get correctly diagnosed. Think about some of the diseases that have only recently been accepted by many physicians as "actual diseases" with real symptoms but in actuality have been around for many, many decades as have their victims; Fibromyalgia, Complex Regional Pain Syndrome (formerly known as Reflex Sympathetic Dystrophy Syndrome), Epstein-Barr, Chronic Fatigue Syndrome, just to name a few. It wasn't too long ago that patients with these diseases were thought to be making up their symptoms.
Chronic Pain has often been called the "Invisible Disability" because so often you can't see pain. But ask any chronic pain patient if they can identify another CP patient and they will tell you absolutely!
So next time you see someone parking in the handicapped spot, that has a handicapped plate or placard but doesn't look handicapped to you, before you start thinking "He/she doesn't look handicapped to me!", think, "I hope they aren't in pain."
Take care, and be safe,
Keith
American RSDHope
Wednesday, August 17, 2011
American RSDHope launches new site!
Yeah! Finally the new site is up!
You thought it wouldn't happen!
It took longer than we thought, the previous site was so huge, thousands of pages, but the new site is up and running and looks great!
what do you think?
Been pretty hot here, in the high nineties, high humidity, combine for a heat index of around 110!
Need to be up north, just not waaaay up north again. The thought of moving is vexing, never a fun proposition but sometimes you have to do what you have to do for your health. This heat is simply too difficult. The summer months in Florida are overpowering sometimes. We think we have found the perfect place and hopefully that will be happening soon.
Ok, so check out the new site, let us know how you like it and we will get to some questions later this weekend!
Have a great week all!
Peace, Keith
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