Wednesday, December 17, 2008
CRPS - Weather changes, do they affect CRPS? RSD?
Saturday, November 15, 2008
CRPS RSD and ICE , Should it be used?
As a result, Ice provides total anesthesia and relief of pain for several minute the same way as the hand becomes numb being exposed to snowballs in the winter. However, a few hours after the cessation of ice exposure, the pain recurs with vengeance due to reactive enlargement of blood vessels after the constriction of blood vessels due to exposure to ice.
This phenomenon causes excellent relief of pain with ice treatment followed by not only aggravation of pain, but damage to the nerve fibers adding sympathetic independent pain (SIP) to the original sympathetic mediated pain (SMP).
The end result is aggravation of the RSD and SIP resulting in failure of nerve blocks and then the patient is told, "You do not have RSD anymore because the nerve block did not help you and the phentolamine test proved that you do not have SMP or RSD".
In stage I, the injured area shows hyperthermia (increased temperature) rather than hypothermia.This is because of a temporary shock to the sympathetic system not being able to preserve heat and to control any heat loss over the skin of the injured area. In a matter of a few weeks, the majority of such patients (over four-fifths of RSD patients) regain the function of the sympathetic system and develop cold skin over the skin surrounding the area of nerve damage. Such patients cannot tolerate ice. If anything, ice aggravates the disease and exaggerates the constriction of the blood vessels and hypothermia (coldness) of the extremity. Even in these patients, the small central area of nerve damage at the area of maximum brunt of the trauma, an area is left with total paralysis of the sympathetic function showing as a pin-point area of hyperthermia on thermography. In these patients which are the majority of RSD patients, ice application should be avoided by all means.
In one-fifth of the cases when hyperthermia persists for a few more weeks, the patient will continue to be intolerant of heat or ice.
In stages II and III, the extremity progressively develops more and more hypothermia due to persistence of the dysfunction of the sympathetic system.
Eventually, towards the end of stage III and beginning of stage IV, in some cases the hyperthermia has a tendency to recur. This phenomenon is in part due to the fact that the patient has had repeated sympathetic ganglion blocks. The repetitive, numerous sympathetic ganglion blocks cause what is called "virtual sympathectomy". This results in gradual hyperthermia of the extremity (warming of the extremity). Even though the extremity becomes warm due to the virtual permanent damage to the sympathetic system, the pain does not get any better. In these patients, again, heat should be avoided.
Regardless of which type of heat intolerance or cold intolerance the patient is dealing with, the so-called heat and cold challenge treatment does no good in RSD patients. It only confuses the diagnosis and treatment and it should be avoided.
In many patients, in stages II and III, in the same extremity, there are islands of sympathetic paralysis, (hyperthermia) and islands of marked hypothermia due to sympathetic nerve irritation. These are the cases that do not respond properly to sympathetic nerve blocks and are classified as SIP (sympathetically independent pain)."
What happens if there are repeated applications of ice and severe damage occurs? The patient can actually accelerate through the stages, so instead of being in stage one for six months where local blocks may give significant relief they are propelled forward into stage two or three where there is no relief at all from blocks. Not only is this discouraging to the patient and sometimes the Doctor, but in many cases the Doctor and/or deciding party (WC, Insurance Company, etc.) may say "If you aren't responding to blocks then you must not have CRPS/RSD". Either not understanding the role that the application that the ice played, not knowing how severely damaging it could be, or not even having a clue that it was a factor at all. The patient is left without a correct diagnosis, many cases without an effective treatment, and now, has damaged nerves as well.
Just one more reason (and there are quite a few) why blocks can work better with some people than others, better in some stages than others, and why we can never compare our pain to other patients pain.
Hopefully, between what I have shared above and the links you will have a much better understanding of why the application of ice is not a good idea for CRPS patients and be able to share the information with your Drs and therapists. Besides the above links there are additional links on the website as well.
Hope this helps!
Peace, Keith
Sunday, September 14, 2008
WE COME TO THE END OF THIS TREATMENT PROGRAM - WHAT HAVE WE LEARNED?
Sunday, September 7, 2008
ONCE MORE INTO THE BREACH DEAR FRIENDS
Wednesday, August 20, 2008
LET ME PUT YOU ON HOLD FOR A MINUTE ...
Wednesday, July 30, 2008
HYPERBARIC OXYGEN THERAPY - PUTTING CRPS INTO REMISSION?
Friday, July 25, 2008
HYPERBARIC OXYGEN TREATMENT - END OF WEEK FOUR
The treatment process may be modified for different types of chambers, either the monoplace or the multi-place chamber. In the monoplace chamber, one person at a time is treated, whereas in the multiplace chamber where more than one patient is treated at the same time, with an attendant present in the chamber. (I am being treated in a monoplace chamber)
Only 100% cotton gown, which is supplied, is permitted in the chamber.
(This varies by clinic. At all clinics what you wear needs to be 100% cotton only but in some you can bring your own cotton clothing. For instance, I wear shorts and a tank top usually. )
No cosmetics, perfumes, deodorants, hair preparations, wigs or jewelry are worn during the treatments. Patients are advised not to take carbonated drinks or alcohol for at least four hours prior to each treatment, and that they should give up smoking and tobacco products, as these interfere with the body's ability to transport oxygen.
Once inside the chamber, the patient will be experience the changing pressure which is the same as that felt in an airplane when ascending or landing. Prior to the treatment, the patient is instructed in techniques of equalizing the ear/sinus pressure by yawning, swallowing, or attempting to blow through the nose while holding it shut. During the treatment the individual will be breathing 100% oxygen, dispersing oxygen into the blood plasma and delivering up to 15 times as much oxygen to tissues as would breathing room air. The treatment length is 60 - 90 minutes, depending the diagnosis and the physician's determination of treatment. The acrylic walls allow for the trained technicians to closely monitor the patient, as well as providing comfortable viewing out of the chamber. From inside the chamber the patient can always communicate with the attending technician via intercom, as well as watch TV, listen to music, or just take a nap.
Yesterday, after my session, Jason Bingham came by Dr Spiegel's clinic for a tour. many of you have been to Jason's RSD BLOGSPOT where he shares all sorts of articles on RSD. He got to see the many chambers available there.
So what is my latest update?
I have had a pretty good week. My full body CRPS seems to be in a serious state of flux. Many of the areas where it once was, it has retreated from and it seems to be concentrating more in the four extremities. It is too soon to really go beyond this description but we will see how everything feels by around mid-week next week. It does appear to be headed for a significant change right now though, the biggest so far.
I have also noted a fairly significant change in the frequency and length of the muscle spasms in my arms and legs. I have had, despite some of the best meds, these spasms for many years, especially at night. Most of you probably have as well. Spasms in the muscles and blood vessels are one of the FOUR MAIN SYMPTOMS OF CRPS. It wasn't anything I hadn't learned to deal with but it could be painful at times and it was always annoying and kept me up or woke me up at night. But these past three nights my muscles spasms have pretty much stopped! I was also able to cut back on the medication I take for them without noticing an increase at all!
As I mentioned before, I would be thrilled to go into remission from this treatment but I would be almost as happy to get 50% remission, especially if I was able to cut my medications significantly in the process. How sick are all of you of dealing with the side effects of the medications? More and more I have been looking to natural remedies where possible to help.
Speaking of which, some of you have asked about vitamins and I thought I had spoken of some here but I will again briefly.
During the HBOT it is recommended that you take vitamin E and some form of B. Many clinics administer vitamin B injections; some before the treatment and some after. These will help replenish the body and speed healing during treatment. It is also recommended that pain patients as a general rule now seriously look at a few other vitamins/supplements such as; Vitamin D, magnesium, and Fish Oil. Many pain patients are found to be deficient especially in vitamin D. Another one to look at that helps promote a more restful and healing sleep is melatonin; the fast-acting chewable or sublingual version rather than the caplet or pill.
ok, I am off to my session. Tomorrow I am going to visit the Orlando CRPS group for their first meeting!
Then collapse and sleep most of the weekend :)
peace, Keith
