I thought I would post this short answer here because we are still getting this question here at American RSDHope and not only from patients but also from family members, some medical professionals, and even from some patients who run support groups.
Some people are still clinging to the old designation "RSD" with the last few ounces of strength in their body and refuse to make the change. Well, guess what? You just don't have a choice.
But I don't wannu
It's kind of like when you work with children in the school system and it is time to read. They will invariably tell you, "But I don't want to read."
"Well guess what? You don't have a choice here. kiddo ;-)"
Actually we try to explain to them how important it is to read, how much it will help them in 2nd., 3rd. and 4th. grade, etc. but you get the idea. We try very hard to never say what your parents did growing up, you all know what I am referring to.
But just because you don't want to do something, doesn't mean that is the way it's going to be.
Unfortunately we can't throw the "Because I said so!" at everyone in the CRPS Community who asks "WHY do I have to call it CRPS?". It just won't work.
The same holds true for deciding what to call our disease.
But because any of us, you, me, anyone who deals with CRPS patients, must help them, we must use the correct and current terminology.
The current and correct terminology says the name of the disease is COMPLEX REGIONAL PAIN SYNDROME, TYPES I AND II, so that is what we must call it. Period. End of story. We don’t get to pick and choose which parts of this disease we want to follow and which we want to ignore. If that were the case I don't think there would be ANY patients who would check off the box "most severe form of chronic pain know to man".
Two Distinct Types
CRPS Type I soon!
’t alone if you still want to hold on to the old “RSD” designation, but you need to jump on the CRPS train quickly. It has left the station and will soon be rounding the bend and out of sight!
I hope that clears things up?
|Nat'l CRPS Awareness|