Monday, July 7, 2014

CRPS Donations

Would you like to make a donation for CRPS research? To help change the life of a newly diagnosed CRPS patient, or help further the understanding of the disease among the medical community? To enable American RSDHope to continue its mission of spreading awareness of the most sinful form of chronic pain that exists today?

We in the CRPS community have made great strides in recent years, more people know about and understand the disease than at any time in the history of our disease but we still have miles to go before we sleep. We still have so much to do, so many patients suffer every day, spend years without a diagnosis, get incorrect treatment resulting in a spreading of the disease and unnecessary agony.

We don't have a cure yet but we do have some treatments that can reduce the pain and make the life of a CRPS patient more enjoyable and mainstream. Patients and their loved ones need to know that people care about them and their lives, their futures.

Help us in our mission and donate today. Every dollar counts. Thank you to everyone who has supported American RSDHope over the last 19+ years and enabled us to help and save so many patients, so many friends. Thank you to everyone who donated their time as well for fundraisers, running support groups, volunteering as mentors, making phone calls and sending emails, and a host of other tasks. Without all of you we could not do what we have done these last two decades.

Mahatma Gandhi once said, "The best way to find yourself is to lose yourself in the service of others."



Keith Orsini

American RSDHope

American RSDHope announces two new ways to shop, save, and donate to CRPS!

Hi Everyone - We have another location in which you can donate to American RSDHope. And, as said in the message below, these donations give us the ability to fund research to help search for a cure and new treatments . 

Check out the Cover Page for AMERICAN RSDHOPE to see the links for FIRST GIVING and Amazon's new SMILE shopping program! 

Here is the link!

UK lawyer wins huge payout for CRPS patient!

UK Lawyer Wins Huge Verdict For CRPS Patient 

Brian Barr has won a settlement of over £905,000 ( $1.5 Million in U.S. funds) for 44 year old Neil Swift, who developed Complex Regional Pain Syndrome (CRPS) after an accident.

Neil Swift was an HGV driver for a Civil Engineering Company.  On 25 July 2010 he returned to the Company yard, only to find a JCB blocking the entrance.   His Manager asked him to move the JCB so he could put his HGV in the yard.  The JCB had been vandalised and its windows smashed.  Neil climbed up the steps on the driver’s side of the cab but was unable to unlock the damaged door from the outside.  He attempted to reach inside through the broken window to unlock the door but, as he did so, he slipped and cut his left arm badly on protruding pieces of broken glass.

In the incident Neil damaged his radial artery, median nerve and flexor tendons. He developed CRPS for which he underwent a median nerve block, Guanethidine blocks, physiotherapy, Pain Management, a Sympathectomy and a nerve graft.

Sadly, Neil has been left with a virtually functionless left arm and hand.  He is right handed. He has not been able to work since the accident.

Check out the complete article on our website here

Donating to websites online or buying items online

Unfortunately, some of us have been victims of someone soliciting funds for a cause. We want to remind you before you buy something from, or donate to someone stating they are giving some of those funds to a specific charity, a 501(3)(c), such as American RSDHope, RSDSA, etc., that you confirm with the organization receiving funds that it's true. Or that there is a legitimate connection between the "donator" and "donatee."  Call the organization, email them, and make sure BEFORE you buy or donate that there is indeed a legitimate connection there. 

We don't like to think that someone would want to cash in on a disease, but we have all seen it in the news. Just be informed. 

If you want to be sure that someone is raising funds for American Rsdhope you can email us or you can call us  at (207) 583-4589. You can also visit our CONTACT US page on our website. 

I am sure you can contact the RSDSA via their website , , if the person raising the money says they are doing so on their behalf.

Thank you everyone! 


Keith Orsini
American RSDHope

Simulating a block by having your foot fall asleep -email questions

I have never heard of doing that and I am not sure how that would work.

Sorry it took so long to respond, we have had an inordinate number of patient emails sent to our our website.

In the future, if anyone has any questions for me or anyone at American RSDHope they will get answered much more quickly if you email us directly at

We get about 150 emails per day between us and typically patients get a response within a few days, we try our hardest. We also make sure not to get behind so we respond as quickly as we can . They can really pile up if you don't!

Thank you to everyone who writes in to tell us how much they have enjoyed our website, how much it has helped them. We greatly enjoy hearing the feedback and knowing that what we are doing works. Our website is approaching 17 million visitors this year, 2014, and next year will mark twenty years that American RSDHope has had their doors open. It hasn't always been easy, physically or financially, but with all of you helping us we have made it.

Have a wonderful week!

Peace, Keith Orsini
American RSDHope