Tuesday, November 22, 2011
Radio Show - National Awareness Month 2011
Hey everyone! Happy National CRPS Awareness Month 2011!
Happy Thanksgiving 2011!
If you were not following our new website you might not have seen that I was on one of the internet radio call-in shows last week. It was a 60 minute show, that they graciously extended to 90 minutes, to discuss CRPS / RSD and let me share some of my story and thoughts.
If you did not get to hear it you can go to the THE WEBSITE and listen to the show in its' entirety.
It was a great deal of fun, Marla the hostess is very funny and has a great outlook on life. We had some great callers and questions and both Marla and I have promised to do another show again in the future. I think she is very lucky to get to do this every week! She gets to talk to so many interesting people.
If you get a chance look through her show archives. One of her past guests was someone I have talked about here on the blog, Dr Spiegel. The Dr who I think is one of the best in the country at performing HBO Therapy. He even gets a chance to discuss something very near and dear to him, his charity work with returning soldiers. It is an amazing program that is growing by leaps and bounds.
The new look to the website, RSDHope is getting great feedback. Thanks everyone! It took a lot of work but it was worth it. If I was one of the "normals" (those people without disease of any kind) it probably would have been done in 1/5 the time it took me, but with all the cognitive issues to deal with everything takes so much longer. Plus, when you can only sit for so long at a time, well, you guys know where I am coming from.
There was an excellent article today from ABC News on Sjogren's Syndrome! I don't know if anyone else out there with CRPS has this but it is a real pain in the tuckkus!
After reading it if you think you might have it click on the link to the Sjogren's Syndrome website. It is a great website that has everything very well spelled out. It is easy to understand.
Well guys, have a wonderful holiday and if you have any questions, just shoot me an email. Check out our website and let us know what you think.
BTW, if you are reading any of the old blog posts and you come across a link that does not work, it is because it is linked to the old website. Chances are the information is still with us, just on the new site in a different place. Let me know what you need and I can direct you to it.
Peace all, be good to one another as they say,