For those who don't know what I am talking about please refer to some of my previous blogs.
If you want to know what it feels like to have your CRPS pain spike a great deal in one afternoon.... let me sum it up in one word;
ARRRRRRRRRRRRRRHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!
Ok, maybe that sounds more like a pirate. "But I don't wanna be a pirate!"
I don't even own a puffy shirt.
Little shout out to all my fellow Seinfeld fans. Great episode.
Ok, my pain was flaring this weekend as I shared, but today after the treatment my feet and hands just went nuts within about 2 hours after the treatment.
So, should I just give up? After all, this HBOT was supposed to decrease my pain not give me more pain right? If I told my friends and family members it was making me worse they would certainly understand if I said I wanted ti quit. Well, some of them. Some of them would say, "What the heck did you spend the last two weeks doing if you are going to quit now? Just push through it you whiner!"
Then I would have to punch those guys and decide later that they were right so I will just skip all of that and decide for myself, it is just a wall.
I can handle a little extra pain. After all, the prize at the end of all of this, even the potential prize, is worth it. 50% , 75%, 100% relief of my CRPS pain/symptoms. Not to mention the fact that HBOT also helps Fibromyalgia, which I have as well. Who knows, in a month or two I may be so pain-free I will feel like I am 13 again. Minus the pimples and growing pains and awkardness, and, ok. maybe not 13 but that was the last time I was pain-free, 100% pain-free.
Short blog today. My body needs lots of rest today.
By guys, pray for me! I will be back tomorrow and know I won't give up. This is simply a minor set-back and I was expecting it.
Keith
2 comments:
Carmen asked me to post this for her.
Hi, my name is Carmen and I have had CRPS since 2002 and fibromyalgia since 1973 along with some disc issues. After reading Keith's newsletter about HOT I immediately found a private clinic and began my first treatment June 20, 2008.
I go every morning except Sat and Sun.
I found an immediate improvement in sleep ( which has been a huge issue with me). I also felt an overall feeling of well being after getting out of the chamber. My short term memory improved as well as my cognitive thinking, and "brain fog".
My swelling is still present and continues to move on to more spots, it is now below my knees. It was primarily in my buttock. So I can't sit or lay on either side, so sleep in back to being a problem. I am confident the the oxygen treatment will help, or more that, they can not hurt. I am committed to the 40 treatments my Dr. told me I will need in order to treat CRPS effectively.
The treatments are expensive, but like all of you I will do anything to get out of this pain! and I just received my approval for Social Security Disability and will receive back wages. I feel as though God heard my prayers!
My thoughts and prayers include all of you.
With love, Carmen
Kudos to the both of you for trying the HBOT treatment and educating us along the way!
Carmen, I read with interest your success in getting SS Disability, I just submitted my application two weeks ago and the anxiety of not knowing whether I will get it is like being stuck in a vast and powerful whirlpool. I havent been able to work since 2006 and my stupid pride kept me from applying sooner. Is there anything either one of you did during the application process that you feel was vital? Any insight you can share with us? I am scared to death that I will be declined even with having completed detailed and organized journals. Is there anything we can do after the applications have been submitted? Any insight you can give will be very helpful. Thanks Keith for all the hard work you've put into this organization!
Best Wishes,
Robert Scott Vogt
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